News & blogs Blogs Losing Hair, Gaining a Community I first started experiencing small patches of hair loss in 2019. I used hairstyles and pretty clips to cover the patch, sometimes even pencilling in around the edge to ensure that it was covered. Everybody just thought that my clips were cute, but I was paranoid and concerned that things may not improve. In time, the patch regrew. However, for the next few years around March it would fall again, usually centred around the same area. In 2023, this episode was much worse. I lost maybe 40/50% of my hair. My crowning glory was now perilously thin, and I know that I wasn't fooling anybody with my attempts to cover it. I have few photos from this time because I couldn't deal with seeing my strands that always felt greasy. I literally blocked my bathroom drain with all my poor hair. I had moved counties with very few friends nearby, and felt incredibly alone. Aside from work, few people I knew saw me in person, and whilst I was aware of alopecia, I thought that I was practically the only one. I plucked up the courage to visit the GP, and was surprised at how seriously I was taken. Whilst I was feeling pretty desperate inside, I thought that my hair loss would be dismissed as cosmetic and offered no treatment. I got referred to Dermatology, but was already aware that this would be a LONG wait (it ended up being about 16 months). I was very relieved when my hair grew again, and sincerely hoped that it would be the end. However, just as I had begun to relax, March (2024) hit again, and literally the day after I finally had a hair cut to even things up, I saw my same old patch rearing its ugly head again. I was in a new relationship, and had absolutely no idea how to tell him, and was convinced that he would leave me. This made the stress even worse. A month or so later, it was shedding with a vengeance. I made a passing comment about a hair caught in my mouth, and my boyfriend said about seeing a lot of hair in the bathroom. I broke down and had to tell him that I was losing my hair, making clear that with my history that I thought it was bad. He simply held me, and once I was calm, explained how he wasn't going anywhere. I continued losing hair, and by August I felt as though I needed to shave. I was terrified, but everybody dealt with it so well. I have never had any negative comments from anybody. Just curious stares and young children blurting out their thoughts; "Mummy, Mummy, that lady has no hair!". It was around this time that I discovered Alopecia UK, and joined the support groups. For some reason, knowing that I wasnt alone out there meant that this time I just seemed to rock it! Towards the end of the year, I saw an advert to become a volunteer Facebook Group Moderator. I wanted to give something back to this community that had meant so much to me, so I applied. It didn't harm that the staff team also ended up being a super bunch! I now see people in those first early stages where they are so scared, and want to show them how in time they can live well, and that life can still be full. I also found the local support group to me, and have met some wonderful characters. We have swapped highs and lows of our stories, and shared hints and tips on wigs, makeup, and all things bald-related. I am now the co-lead for the Essex group. I continued losing, and by early 2025 had no hair on my head. In March 2025, I then lost my eyelashes and eyebrows in the space of a week. This was a *hard* blow. I have never got on with false lashes, but had to quickly learn. Due to the nature of my job, I cannot wear makeup or jewellery at work, so definitely felt pretty unfeminine during the week. I finally got approval and started ritlecitinib (Litfulo) in July 2025. There was never any doubt that I wanted to try this new treatment that offered me a lifeline. Even if just to try and get my lashes back!! So far I am having a pretty decent response on the treatment. It is amazing how I have felt my confidence improve. I now have a short dark crop covering most of my head again. Short term I am not experiencing any side effects that cant be dealt with. I hope that longer term this proves to be the right decision. I continued losing, and by early 2025 had no hair on my head. In March 2025, I then lost my eyelashes and eyebrows in the space of a week. This was a *hard* blow. I have never got on with false lashes, but had to quickly learn. Due to the nature of my job, I cannot wear makeup or jewellery at work, so definitely felt pretty unfeminine during the week. I finally got approval and started ritlecitinib (Litfulo) in July 2025. There was never any doubt that I wanted to try this new treatment that offered me a lifeline. Even if just to try and get my lashes back!! So far I am having a pretty decent response on the treatment. It is amazing how I have felt my confidence improve. I now have a short dark crop covering most of my head again. Short term I am not experiencing any side effects that cant be dealt with. I hope that longer term this proves to be the right decision. This charity means so much me. Where else would we have the annual Alton Towers trip - an occasion to go on rollercoasters without the fear of losing our wig, and perhaps the first time that other people in the park may have seen someone with alopecia. For some attendees, it may be the very first time that they have met someone else with their condition - someone who truly understands it. I was proud to be one of Alopecia UK's Charity Champions this year, taking part in a tandem skydive to raise awareness and funds for the charity. My fundraising page received £845 in donations and I am delighted to have done my bit to support the charity that has helped me, and continues to help so many others. I encourage others to get involved in supporting Alopecia UK - whether that be jumping out of a plane like me, or something a bit less extreme! Manage Cookie Preferences